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Stehpanie
e-mail:
stephohayon@netzero.net
Location: Walnut Creek, CA
Birthdate: June 15,
1980
Onset/Diagnosis: onset- 1)
August, 1990 2) December, 1999 Diagnosis- March 8, 2000
Other Health Conditions:
none
Surgeris due to Still's:
none yet
Current Meds: Prednisone -
40 mg; Methotrexate - 7.5 mg, Floric Acid, Vitamin D, Daily Supliment
Occupation: College
Student
Family: Father, Henri;
Mother, Louise; Brother, Fred; Dog, Fabrice
Favorite Activities:
Shopping, Reading, Partying, Doing what any normal girl my age likes to do,
including being me and enjoying my life!
Braden J. Allen
Kim Carlson-Murray Email: kmm09@health.state.ny.us Location:
Schaghticoke, New York Favorite Activities: creative stuff: sewing, drawing, painting, playing w/ my kids Steve Urban Email: SUrban@aol.com Location: Newport News, VA Birthdate: Oct 29, 1962 Date of Onset/Diagnosis: July 1995 Other Health Conditions: Anemia Surgeris due to Still's: none Current Meds: Prednisone, Plaquenil, methotrexate, folic acid, imuran, naproxyn, calcium Occupation: Early Retirement from the Military Family: Married to a witch (pagan), 7 year old daughter, 1 cat Favorite Activities: camping, gardening, hunting, reading, writing
Becky Reeves Email: BeckReeves@aol.com Location: Dallas, TX Birthdate: Sept 5, 1971 Date of Onset: May 1999 Other Health Conditions: None Surgeries due to Still's: None Current Medications: Prednisone 40mg, Celebrex 200mg, Codiene, Precodan As Needed for Pain( Currently 3 times a day) Prevacid As Needed, Ambien As Needed for sleep Occupation: Administrative Manager Family: Single, Boyfriend for 5 yrs, 2 dogs-Shibu Inu 4 yrs, Border Collie, no kids Favorite Activities: Traveling, jet skiing, NOT BEING IN PAIN!!!!! Rhonda Gale Creely
e-mail:
myrainbow@freewwweb.com
Location: Greenville,
Mississippi
Birthdate: November 27, 1956
Year of Diagnosis: 1994
Other health conditions: ocular
migraines
Surgeries related to Stills:
none
Current Medications: Plaquinil,
Vioxx, Imuran, Maxalt(as needed for migraines) Glucosamine/Chondroitin,
Vitamin E, Folic Acid,
Family: I am divorced. One son
who lives with me
Favorite thing: RAINBOWS! I
love them!! They are so full of hope and promise.
Favorite saying: "To enjoy the
beauty of a rainbow, you have to first put up with some rain!"
Deb Bartl mail:
dob38@yahoo.com Cathy Ledsome
E-mail:
mcledsome@mindspring.com
Location: Plano, TX
Birthdate: October 6, 1971
Onset/Diagnosis: Onset -
March, 1997 Diagnosis - October, 1997
Surgeries due to Still's
Disease: Left hip replacement - June, 1999 Right hip replacement -
December, 1999
Current Medication:
Methotrexate 22.5 mg, Prednisone 7.5 mg, Plaquenil 200 mg 2/day, Naprelan 500
mg 2/day, Prilosec, Vitamin E, Oscal w/ Vit. D, One A Day, Folic Acid 1 mg, &
Slow FE
Occupation: Second Grade
Teacher
Family: Husband, Mike;
Mother, Cathy (also); Father, Jim; Brother, Jimmy; and Dalmatian, Shelby
Favorite Activities: Shopping,
Reading, Swimming, Sharing time with family and friends
Lisa R. Email: LKR06@aol.com Location: Houston,
Texas Christina Foster Email: greywolf@frontiernet.net Location: Otisville, NY (about 70 miles North of NYC) Birthdate: June 10, 1970 Date of Onset/Diagnosis: 11/97 Other Health Conditions: RA, colitis, diverticulosis, high blood pressure, vertigo Surgeris due to Still's: none (yet ) Current Meds: Enbrel, Medrol, prednisone, plaquenil, tenormin, and calcium Occupation: Administrative/Management in Local Service Provisioning for local telecommunications company. Family: 2 sons, Sean & Nicky. 2 cats Snickers and Missy Favorite Activities: arts & crafts, painting, reading. I used to be in the volunteer ambulance corps as an EMT (can't do that anymore), but I still like to keep up on medical knowledge/first aid/etc.
Shannon E. Wagstaff
Email:
crimsons@cyberhighway.net
Location: Parma, Idaho
Date of Onset/Diagnosis:
Onset--August 27, 1999, Diagnosis--October 12,1999
Other Health Conditions:
None
Surgery due to Still's:
None (yet)
Current Meds: 3,900mg
Aspirin, 60mg Prednisone325mg Iron, Multi-Vitamins, 20mg Prilosec, 2.5mg
Ambian (sleeping pill)
Occupation: Housewife
Family: Dan, Husband of 9
years, Son Ivan 7, Daughter Nikki 5, Daughter Laura 3
Favorite Activities:
Crochet and being with my family and my mom and dad
diagnosed - 1-7-1999 stills
disease age 45
DOB 7-16- 53
occupation - 100 disabled
family - married 26 years , 2
daughters
medicines - methotrexate- 70
units, predisone 5mg, quinine, vicodine, celebrate 400 mg, vitamin, prilosec
when i was first diagnosed
they took 900 cc of blood off around my heart, my white blood count was
extremely high, which in turn had to give me blood to get the red blood count
up. the pain was unbelievable. i don't feel i have ever been in remission.
everytime they tried to take me off the medicine i'm right back in the
hospital. the newest thing happening is i have lost the half of my eyesight
in both eyes. first it was the right eye and now the left. the eye specialist
doesn't know much about this disease either. he thinks i had a light stroke. i
don't think i have. everything I've read correction everything my wifes read
points to the medicines. with my eyesight the way it is its even difficult to
drive or anything. we are after any info that can help us beat this thing. we
are afraid of whats going to happen next. the doctor told us only 6 percent of
stills patients are affected with heart paricartis and blood count problems.
this didn't make us feel better. please if there is anyone out there that can
make a difference please e-mail us.
thanks,
James & sandy hamby
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