Lesa Carr

 

My name is Lesa Carr. I live in Holly Pond, AL with my husband Ricky, and my 18 year old daughter Mary. I was diagnosed with stills disease in 1984 just after my daughter's 1st birthday, at that time I was 20 years old.
I was very active in high school sports and also in summer sports. This diagnosis came as a sudden and shocking  to me and my family. 

 

Over the past 19 years I have tried many medicines, I am now taking Enbrel twice a week, darvocet and flexeril. I have had both hips replaced ( they are wonderful), both knees replaced (sometimes not so wonderful, but better than before), and some bones in my right ankle have been fused. The Enbrel shots have worked very well. I have learned many things from this disease, 1st is to take 1 day at a time. I have learned that we don't really think about our health untill some of it is gone, and most of all I have learned that God is with me through the good times  and bad!

 

I would love to hear from someone who also has Still"s Disease,  I have never met anyone who has this disease.

lcarr@powernet.org

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